Nothing like quoting Silence of the Lambs for people to question what kind of disability you have.
I think that's where it comes into play, when you are just looking at a document or whatever and you see the word "disability." Does that automatically trigger something in you that denies someone their personhood?
I thought this should be a travel show, because a lot of people with physical disabilities get discouraged.
I always say, once I get in a room, I can sell myself just fine. I know that not everyone who has a disability has the social skills or cognitive skills that I do, and it may be harder for them to navigate through.
Even if you have an ADA room, every disability is so different that people need different things. A lot of times they'll put something on the toilet to make it higher, and for someone transferring from their chair that's fine, but I transfer from the floor so it causes more problems.
I feel a lot of personal responsibility to undo the negative stereotypes. I know that it's not coming from a bad place. It's coming from an ignorant place. I can sort of be an ambassador in a subtle way to say, "This is what I am: a comedian, a show host, a writer." It will still always be part of the conversation and people will want to focus on it because there is a culture that is so embedded that if you have a disability, you're someone to be either admired just for living, or be pitied for having to struggle.
There's a tendency to treat anyone with a physical disability as inspiring. I call it a pedestal of prejudice, in that you're lifting people up to dismiss them. My whole thing is bringing us down to everyone else's level and saying we're all the same. The struggle is the same.
The thing to do is just make sure that as part of a disability community, we're not isolating ourselves by drawing differences for the sake of progress.
The biggest disabilities are when you sabotage yourself mentally, those personal demons that get on your shoulder and you can't shake 'em.
If everything was perfect, it would always be a person-first conversation, but whenever I have the opportunity, I lead with my personality. If they're looking and seeing the disability first or the chair first, I know that I have the ability to change that.
Having a son with a disability helps makes Walter White a more sympathetic character. There's no story line that shows Walt Jr. going through the things that you go through as a teenager with a disability. It's always his relationship to other characters. That was my issue with it.
I do a lot of conferences, and I did a campaign with the Cerebral Palsy Foundation called "Just Say Hi." They get celebrities to record little messages about how you start a conversation with someone who has a disability, which is to "Just say hi."
When I read the script [of Glee], the whole premise was that all the high school kids were being cruel to this kid in the wheelchair, and then the quarterback comes along and has a heart of gold and takes him out of a Porta Potty. That's too often what I see in media, that the characters with disabilities are there to make other people seem like heroes for treating the character with a disability with respect. Those are the kinds of roles that are out there.
Call yourself and define your relationship to your chair the way you want to, or your disability the way you want to.
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