I discovered that I was part of a Parkinson's community with similar experiences and similar questions that I'd been dealing with alone.
I don't look at myself as a leader. I do look at myself as part of a community.
There's a connection that's hard to explain. It's the feeling I get when I see someone shuffle up to meet me, or say something, and I can instantly tell by the cant of their head or by the movement of their arms -- and these are people who aren't even full-blown symptomatic -- that they're one of us. And the look they give me, it's not just gratitude -- I don't care about the gratitude -- but solidarity. And shared optimism. And a resiliency that just makes me think we're doing the right thing, and that this truly is a community.
I take the medication for myself so I can transact, not for anyone else. But I am aware that it is empowering for people to see what I do and, for the most part, people in the Parkinson's community are just really happy that Parkinson's is getting mentioned, and not in a pitying way.
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